Here are some of the books I’ve found that are meaningful to me and have helped me in one way or another to deal with the mental and physical stress after an ALS diagnosis. Not all deal directly with Lou Gehrig’s disease. Some offer hope, some offer comfort, some are biographies, and some are just entertaining.
The Deanna Protocol®: Hope For ALS and other Neurological Conditions by Vincent M. Tedone M.D., Deanna Tedone-Gage and Chiara Tedone (Authors) is the first book I picked up after my diagnosis. I’m not endorsing the protocol but admit that I have been a believer in much of the information I read. And I am a subscriber of the supplement. The book can be a tough read, having to relive many of the hard doctor visits they’ve been through, and the science can be a bit daunting, but hope can be found here.
The ALS Puzzle Solved? A Theory of Why Two Harmless Off the Shelf Hormones Should Stop ALS in its Tracks! (ebook) by Jeff Bowles (Author)
The Tale of an ALS Reversal: A Terrifying & Insightful Journey by McFinn Lovere (Author). If you’re looking for a well-written book, this is not it. McFinn takes us through his journey after being diagnosed with ALS. You’ll find no scientific reasoning but at the very least it can be a bit entertaining. As Aresenio Hall used to put it…..things that make you go HMMMMM?
A Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence by Steve Gleason and Jeff Duncan (Authors)
Fight Back With Joy, Celebrate more, regret less, stare down your greatest fears by Margaret Feinberg (Author) is written by a breast cancer survivor and details her determination to go through the long treatment and recovery process with joy. She details the hard road and her determination to not let cancer define who she was or how she wanted to live. I found a lot of inspiration in her story and highly recommend it.
Onward Forward — My Journey with ALS: Finding Beauty and Love in the Clusterf*ck by Brian Jeansonne (Author), Alanis Morissette (Foreword)
Hope Fights Back: Fifty Marathons and a Life or Death Race Against ALS by Andrea Lytle Peet and Meredith Atwood (Authors)
Luckiest Man: The Life and Death of Lou Gehrig by Jonathan Eig (Author)
Someone I Love Has ALS: A Family Caregiver Guide by Jodi O’Donnell-Ames (Author)
Hold On, Let Go: Facing ALS with courage and hope by Nadine Sands (Author)
Navigating Amyotrophic Lateral Sclerosis (ALS) Nutrition: Empowerment Through Nutrition: Tailored Approaches, Tips, And Delicious Recipes For Managing ALS Symptoms And Enhancing Quality Of Life by Dr. Jace Zayden (Author)
Never Say Invisible: A Memoir of Living and Being Seen with ALS by Jeremy Schreiber (Author), Augusten Burroughs (Foreword)
A Life Derailed: My Journey with ALS by Nate Methot (Author)
We Laughed ‘Til We Cried: Living, Loving and Laughing with ALS by Lynda Strahorn (Author)
